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Listed below are other organisations and a brief description of their purpose:
APFED - American partnership for Eosinophilic Disorders.
PINNT - Registered UK charity for support of patients on intravenous and nasal gastric nutrition.
CCED - Cincinnati Centre for Eosinophilic Disorders. Lots of useful information supplied by real experts.
SHS (UK) - Suppliers of elemental formulas.
Contact a Family - provides support, advice and information for families with disabled children, no matter what their condition or disability. A registered charity since 1979, they have 30 years helping families coping with all forms of disabilities.
Extra Special Parents - Extra Special Parents features a very user-friendly forum for parents and carers of children with all kinds of additional needs, regardless of the severity of those needs. |