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Families Affected By Eosinophilic Disorders (FABED) is a UK based website designed to help families suffering with Eosinophilic disorders. Patients may have already been diagnosed with an Eosinophilic disorder (ie; eosinophilc gastroenteritis EG, eosinophilic oesophagitis EE or eosinophilic enterocolitis EC ). or may be currently be under investigation for any of the range of allergic disorders associated with these conditions.
We also welcome members who have severe food allergies, patients currently using Elemental feeds such as EO28 or Neocate. Although this site is primarily for parents/families, adults suffering with this condition are welcome to join and share. We also welcome European and International members. Currently we are an online service only, but this should expand as the information and service grows.
The easiest way to share information is to join our Yahoo group, which currently had over 150 members some diagnosed, some not!! Click on the link above to join, or click here. The group moderator will then give you access to the group. We are gaining new members all the time and by joining you will regain your sanity and learn more each day.
We hope to raise public awareness in the United Kingdom of this illness. A number of hospitals in the UK now have the FABED poster up and we have produced a leaflet for giving to schools as an aide memoire to the condition . If you are not sure whether you should join and would like some more information, please e-mail us at info@fabed.co.uk. Be sure that you are not alone in dealing with this condition and there are people with experience to help.
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